Active 2 years, 1 month ago Lory G Cully

@nicetee

Member since October 2, 2019

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    Lory G Cully changed their profile picture 4 years, 6 months ago

  • Profile picture of Lory G Cully

    Lory G Cully changed their profile picture 4 years, 6 months ago

  • Profile picture of Lory G Cully

    Lory G Cully changed their profile picture 4 years, 6 months ago

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    Lory G Cully posted a new activity comment 4 years, 6 months ago

    thank you for the welcome. I heard that saying too. how true. it is nice to feel understood. Flare up days.
    they can be so painful. sometimes just have to do nothing and rest. Thanks again.

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    Lory G Cully posted a new activity comment 4 years, 6 months ago

    Hi jerry,
    Thank you for your reply. It also was a long battle for me. it has taken 5 years and a lot of misdiagnosis. One dermatologist finally did some blood test and refer me to rheumatology. it was nurse who recommended a
    doctor who deals in rare disease. she has a rare disease herself. its has been really hard. I am really sensitive to
    meds.…[Read more]

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    Lory G Cully commented on the post, My Life as a Vampire 4 years, 6 months ago

    me too thanks for sharing. its nice to find some one who understands.

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    Lory G Cully became a registered member 4 years, 6 months ago

    • Profile picture of Jerry Williams
      Jerry Williams replied 4 years, 6 months ago

      Hi Lory and welcome to #MyositisLIFE. Thank you for joining this new and growing site. My name is Jerry Williams and I was diagnosed with polymyositis 18 years ago after an almost 4-year battle for a diagnosis, which has since been corrected to dermatomyositis by some of my doctors. I am the Founder and President of Myositis Support and…[Read more]

      • Profile picture of Lory G Cully
        Lory G Cully replied 4 years, 6 months ago

        Hi jerry,
        Thank you for your reply. It also was a long battle for me. it has taken 5 years and a lot of misdiagnosis. One dermatologist finally did some blood test and refer me to rheumatology. it was nurse who recommended a
        doctor who deals in rare disease. she has a rare disease herself. its has been really hard. I am really sensitive to
        meds.…[Read more]

      • Profile picture of Jerry Williams
        Jerry Williams replied 4 years, 6 months ago

        @nicetee So great that you have a friend that is willing to deal with the darkness. Losing friendships is something I know all too well. Over the 18 years I have been living with myositis, I have learned who my true friends are and my Mom always told me growing up that one day I would. Please know you have me, us. We understand.

      • Profile picture of Lory G Cully
        Lory G Cully replied 4 years, 6 months ago

        thank you for the welcome. I heard that saying too. how true. it is nice to feel understood. Flare up days.
        they can be so painful. sometimes just have to do nothing and rest. Thanks again.