@efilmore
Member since April 29, 2019
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Emily Filmore commented on the post, Vaccines, Freedom, and Loss of the Pandemic Cocoon 3 years ago
Thank you, @jerrywilliams, I worry too, that “heathy”people will not “remember” what this was like. I really had hoped that the world would come out of this with more empathy for people with chronic illness. I can’t wait until you are vaccinated and safer too. 💖
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Emily Filmore published “Story” 3 years ago
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Emily Filmore wrote a new post 3 years ago
I don’t work due to my cluster of diseases, at the forefront being dermatomyositis, my body riddled with weakness, rashes, fatigue, and pain. I’ve been immune suppressed for much of the past 26 years.
I kno […]
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Jerry Williams replied 3 years ago@efilmore Thank you for sharing the emotions you are experiencing. I haven’t yet been vaccinated so I am still stuck in my “cocoon” and while I am happy that things are opening up, but one of my fears is that people might forget that this is sort of how we live all the time. I hope that the many valuable lessons we have learned through this will be addressed, and I hope telehealth is here to stay. As always, your writing has helped me to start thinking about this for when the time is right for me to burst out of the “cocoon.” Thank you!
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Emily Filmore replied 3 years ago
Thank you, @jerrywilliams, I worry too, that “heathy”people will not “remember” what this was like. I really had hoped that the world would come out of this with more empathy for people with chronic illness. I can’t wait until you are vaccinated and safer too. 💖
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Emily Filmore wrote a new post 3 years, 3 months ago
Is the United States the land of the “free” or the land of the “me”? Are personal freedom and empathy bound to be in conflict or can they co-exist? I propose that they can, in fact, fuel each other. […]
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Emily Filmore wrote a new post 3 years, 3 months ago
We take our shoes off, we go through metal detectors, we do so many things that “infringe” upon our previously understood everyday freedoms. But we agreed to them, bought into them and accepted them as nec […]
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Emily Filmore wrote a new post 3 years, 6 months ago
Support and Understanding
by Emily FilmoreIf ever I feel weak, your love makes me strong
If ever I feel scared, your support makes me fierce
If ever I need to talk, I remember you are only a click or call […]
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Emily Filmore wrote a new post 3 years, 11 months ago
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Emily Filmore wrote a new post 4 years ago
[vc_row][vc_column][vc_video link=”https://youtu.be/KvdixSbnyfY”][vc_column_text]While self-quarantined for the past four weeks to protect herself from the Coronavirus, Emily has tried to find ways to both occupy […]
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Jerry Williams replied 4 years ago
@efilmore Thank you for putting this video together. While I don’t sew, if I did, it looks like this would be an easier way. I imagine this will help many people. Keep up the great work. I am so proud of you!
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Emily Filmore wrote a new post 4 years, 3 months ago
What happens when you are a parent with myositis, and your child gets a cold or flu? You don’t stop being a parent. You don’t stop wanting to comfort and give love at 2am when they can’t sleep, just because you d […]
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Emily Filmore wrote a new post 4 years, 3 months ago
The typical drugs used to control myositis lower the immune system to make it stop attacking the patient’s own body: steroids, Methotrexate, Cellcept, Imuran, Tacrolimus, Plaquenil, Rituxan, as well as others, a […]
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Emily Filmore wrote a new post 4 years, 9 months ago
Hi, my name is Emily. I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.” I swear, I’m not going to suck your blood. I don’t have sharp pointy teeth. However […]
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Lory G Cully replied 4 years, 6 months ago
me too thanks for sharing. its nice to find some one who understands.
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