@myositis
Member since March 25, 2019
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Myositis Support wrote a new post 4 years, 5 months ago
[vc_row][vc_column][vc_custom_heading text=”Register to attend “Surviving the Holidays with Myositis“” font_container=”tag:h3|text_align:left” use_theme_fonts=”yes”][vc_custom_heading text=”Wednesday, November […]
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Myositis Support wrote a new post 4 years, 6 months ago
[vc_row padding_top=”10″ padding_bottom=”20″][vc_column][vc_video link=”https://youtu.be/3SdQ6_6YBuY”][vc_column_text]Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra […]
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Myositis Support wrote a new post 4 years, 6 months ago
Rare Disease Patient Advocates
We thought you would like to see a fun moment from the Global Genes Patient Advocacy Summit.Seth Rothberg, co-founder of Our Odyssey and a rare disease advocate and motivational […]
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Jerry Williams replied 4 years, 6 months ago@lynnwilson Love your rare disease advocate dance with Seth!
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Myositis Support wrote a new post 4 years, 11 months ago
If you really want an example of what being a #MyositisWarrior is all about look no further than the pain medicine debacle. The CDC has recently released information indicating that the rash of pain medicine […]
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Myositis Support wrote a new post 4 years, 12 months ago
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. I’m tired of scaring my children. I’m tired of them putting on a “brave face” for me. I’m tired of worrying my paren […]
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Myositis Support wrote a new post 4 years, 12 months ago
This campaign is now closed. Thank you for your support!
View this post on Instagram"I Care About A Myositis Warrior" shirts are available for order, but only for 8 more days! These shirts are perfect for a spouse, caregiver, family member, or friend of something living with myositis. Available in child, adult and plus sizes. 🎗️ Order at http://www.customink.com/fundraising/myositissupport2 or visit http://bit.ly/msu2019 to see all three shirt campaigns. #myositisawareness #myositiswarrior #myositissuperhero #caregivers #carers #carepartners #myositis #inclusionbodymyositis #thestruggleisreal #dermatomyositis #polymyositis #necrotizingmyopathy #jdm #juvenilemyositis #myositisLIFE
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Myositis Support wrote a new post 5 years ago
[vc_row][vc_column][vc_video link=”https://youtu.be/HYeG4mM-Iq4″][/vc_column][/vc_row][vc_row][vc_column][vc_column_text]This was more like “A Month in the Life” since I filmed almost every day this month for Myo […]
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Myositis Support wrote a new post 5 years ago
In order to understand how Prednisone changes a person’s life, you need to know what physical activities their life consisted of before. What was modified and how have things changed?
Before Polymyositis, I at […]
