@marylewis
Member since October 4, 2021
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Mary Lewis commented on the post, Myositis Awareness Month Honesty 1 year, 11 months ago
Linda, thank you for writing this and sharing your Myositis journey and experience so openly and honestly. You are an amazing warrioress and have been hugely supportive to me. I, too, am so hopeful that with starting the Rituxan, you will experience some sustained improvement. And again, thank you for writing and in so doing, helping and…[Read more]
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Mary Lewis commented on the post, Preventing frailty: What Myositis Patients CAN Do 2 years, 6 months ago
Thank you, Jerry!
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Mary Lewis wrote a new post 2 years, 6 months ago
My favorite presentation from the 2021 TMA International Annual Patient Conference was Dr. Conrad (Chris) Weihl’s “Navigating the Long Term Effects of Myositis.” Specifically, it was Dr. Weihl’s discussion around […]
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Mary Lewis changed their profile picture 2 years, 6 months ago
Thank you for writing this, @marylewis! There are so many wonderful gems in your article, including the reference to the protein calculator. As myositis patients, we need to move our muscles in whatever ways we can and this reinforces our Get Moving campaign. This is an opportunity to empower ourselves to advocate, find movement that will work for us, and ensure we are meeting nutritional protein needs to help maintain and build muscle. Great article!
Thank you, Jerry!