Activity
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Katy Bridges became a registered member 1 month, 1 week ago
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Corene Canaan became a registered member 1 month, 1 week ago
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Jennifer Szabo became a registered member 1 month, 3 weeks ago
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Lizzy Finn published “Story” 2 months ago
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Lizzy Finn wrote a new post, Learning to live with the ups and downs 2 months ago
I am on day four of bed rest following another stint in hospital (more on that shortly) and I am BORED OUT OF MY SKULL!
I have watched EVERYTHING on Netflix, and other associated streaming apps. I am in that […]
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Juni became a registered member 3 months ago
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Cherie Seiver became a registered member 3 months ago
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intravinfusions changed their profile picture 3 months ago
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intravinfusions became a registered member 3 months ago
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Jenn Dixon became a registered member 4 months, 1 week ago
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Myositis Support published “Story” 6 months ago
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Marty Sasser became a registered member 6 months, 1 week ago
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McKenna Telke published “Story” 6 months, 1 week ago
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McKenna Telke wrote a new post, The Healing Power of Creativity 6 months, 1 week ago
I’ve been creating for as long as I can remember. I would create complex storylines, characters, and unique worlds. Art and writing are things that have always been a comfort to me, a therapy, and not just that b […]
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Linda Rabinowitz replied 6 months, 1 week agoSo much soothing inspiration from someone so young! (Not to mention talented) Thank you McKenna!
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McKenna Telke replied 5 months, 3 weeks ago
I am so glad to hear that you were inspired by my article. I hope that you may find yourself on a creative journey yourself as well. And I am so glad that you enjoyed my artwork. 😄❤️
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McKenna Telke changed their profile picture 6 months, 2 weeks ago
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Robert M Soward posted an update 6 months, 2 weeks ago
Are any other members Veterans?
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Robert M Soward posted an update 6 months, 2 weeks ago
I tried CBG and that helped relieve some of the pain within my body.
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Linda Rabinowitz published “Story” 6 months, 2 weeks ago
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Linda Rabinowitz wrote a new post, Myositis Awareness Month Honesty 6 months, 2 weeks ago
It’s May so Myositis Awareness Month has arrived. Myositis is a crazy weird group of diseases, so I guess it makes sense that someone crazy and weird like me should have it! 🤓🥸 I have refractory (a disease or con […]
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Jerry Williams replied 6 months, 2 weeks agoIt’s so great to see you writing again, @momluvs4kidz! I am sorry for your struggles, again, and so very hope that Rituxan will once again be a saving grace for your lungs and that your muscle strength improves. These flares seem to weaken us more each time. Thank you for sharing your experiences and for being so willing to help others. So much love to you!
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My love is with you right back. I’ve gotten good at seeing where muscle loss has happened…don’t know if that’s a good thing to get good at but here we are 🤷🏻♀️🤭 lol.
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Mary Lewis replied 6 months, 2 weeks agoLinda, thank you for writing this and sharing your Myositis journey and experience so openly and honestly. You are an amazing warrioress and have been hugely supportive to me. I, too, am so hopeful that with starting the Rituxan, you will experience some sustained improvement. And again, thank you for writing and in so doing, helping and supporting us ALL! You rock!
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Linda Rabinowitz replied 6 months, 1 week ago
💙💙
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Robert M Soward became a registered member 6 months, 2 weeks ago
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