Rare Disease Patient Advocates
We thought you would like to see a fun moment from the Global Genes Patient Advocacy Summit.
Seth Rothberg, co-founder of Our Odyssey and a rare disease advocate and motivational speaker, and Lynn Wilson, Vice President of Myositis Support and Understanding (MSU), having some fun at the Global Genes Patient Advocacy Summit in San Diego, CA, last month! See the full highlights video and learn more about Global Genes here.
Made it onto the @GlobalGenes Patient Advocacy Summit highlights video with Lynn from @MyositisSupport! #proudmoment #famousforasecond #ourownboomerrang @_OurOdyssey_ pic.twitter.com/MeP19wLtLs
— Seth Rotberg (@Srotberg15) October 9, 2019
Find Lynn and Seth at 1:09 of the video above.