Our Dad was More Than His Dermatomyositis
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
Community
Articles and information related to the myositis community.
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MSU participates as sponsor of the 2019 TMA Annual Patient Conference
Check out some photos we captured participating as a sponsor of the 2019 TMA conference. Find information about our sponsors and partners that also attended....
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Global Genes Patient Advocacy Summit Highlights Video 2109
Seth Rothberg, co-founder of Our Odyssey, and Lynn Wilson, VP of Myositis Support and Understanding (MSU), having some fun at the Global Genes Patient Advocacy...
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MSU supports our myositis community members who are Black and are other People of Color (POC)
The vision statement for MSU says that we aim to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of...
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Easy tutorial for CDC recommended mask
Emily walks us step-by-step through making a fabric mask using a technique and design approved by the CDC.
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May is Myositis Awareness Month!
Welcome to May 2021, Myositis Awareness Month. Join Myositis Support and Understanding in fundraising, educating, and supporting!
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Coronavirus concerns with Myositis
Coronavirus (COVID-19) and myositis, resources to keep you informed and protected. Practicing good hygiene and not panicking are important tips.
