Treat my symptoms, please…but don’t patronize me
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
We explain and highlight a personal account of how one patient fought the insurance company trying to deny a medication for myositis.
Check out some photos we captured participating as a sponsor of the 2019 TMA conference. Find information about our sponsors and partners that also attended....
Seth Rothberg, co-founder of Our Odyssey, and Lynn Wilson, VP of Myositis Support and Understanding (MSU), having some fun at the Global Genes Patient Advocacy...