Back to square one?
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
We can learn so much from each other so I thought I'd share some ways I have adapted to living the #MyositisLIFE and I hope...
Important takeaways from Dr. Conrad Weihl's presentation, "Navigating the Long Term Effects of Myositis," specifically on movement/exercise and nutrition for building and preserving muscle mass...
It was a different experience watching "Queer Eye" this time with chronic illness. How can I zhuzh things up in my life?
Emily walks us step-by-step through making a fabric mask using a technique and design approved by the CDC.
We are going to be here for a while. So, make yourself comfortable. Dig out those blankets for the sofa. Stock up (but don’t hoard)...
It could have all gone horribly wrong, but it didn’t. And yes, a lot of that is luck. But a lot of it is also...
Thoughts while recovering from my first dermatomyositis flare