Pain Never Sleeps
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
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Staying positive with dermatomyositis
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Pain Never Sleeps
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Why, why, WHY?
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Waiting
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Leg and Arm Exercises for Myositis
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I’m…so…FRUSTRATED!!
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My Life as a Vampire
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“You’re pregnant, get used to it”
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Long time coming…
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Poly Life
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Feeling like you need your Caregiver to substantiate...
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The pain med taper debacle
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Here I am
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A Light in the Dark: My Realities with...
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Treat my symptoms, please…but don’t patronize me
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Advocating for Yourself in the Midst of Insurance...
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New symptom whack-a-mole
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The Heart of Healing
I Care
I Care -
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Waiting
Thoughts while recovering from my first dermatomyositis flare
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I’m…so…FRUSTRATED!!
I won’t give up, no worries. Sometimes I just want to SCREAM in rage at this stupid disease and the never ending cycle of flare...
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“You’re pregnant, get used to it”
My pregnancy journey with dermatomyositis.
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Poly Life
Choosing positivity in this challenging disease and to be strong in mind, body, and soul.
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Feeling like you need your Caregiver to substantiate your symptoms
No myositis patient should feel their medical staff is not taking them seriously, especially because of their gender.
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The pain med taper debacle
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
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Here I am
Living the #MyositisLIFE for many of us.
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A Light in the Dark: My Realities with Dermatomyositis
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
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Treat my symptoms, please…but don’t patronize me
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
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The Heart of Healing
I realized that healing includes body, soul and mind.
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My Mom Has Dermatomyositis (DM)
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
