I Care Inclusion Body Myositis does not change the way you love your parent. It should not change the way you look at your parent. I had...
It seems silly going into ED for what turned out to be just a cold, but such is my life now. You never know if...
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
I put it in the back of my drawer...thinking that would lessen the sting of seeing it and being reminded of all I’ve lost...
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
My pregnancy journey with dermatomyositis.
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
I won’t give up, no worries. Sometimes I just want to SCREAM in rage at this stupid disease and the never ending cycle of flare...
Parenting with myositis is no different than parenting without. There is no time out, no free parking! It just has a few more obstacles.
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
