What does chronic illness mental fatigue feel like?
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
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Staying positive with dermatomyositis
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Pain Never Sleeps
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Why, why, WHY?
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Waiting
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Leg and Arm Exercises for Myositis
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I’m…so…FRUSTRATED!!
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My Life as a Vampire
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“You’re pregnant, get used to it”
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Long time coming…
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Poly Life
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Feeling like you need your Caregiver to substantiate...
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The pain med taper debacle
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Here I am
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A Light in the Dark: My Realities with...
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Treat my symptoms, please…but don’t patronize me
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Advocating for Yourself in the Midst of Insurance...
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New symptom whack-a-mole
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The Heart of Healing
I Care
I Care -
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“Save Me” Song about Myositis
"Save Me" by Alyssa Smith is a song about myositis, released for Rare Disease Day 2019.
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That D**n Pay Stub
I put it in the back of my drawer...thinking that would lessen the sting of seeing it and being reminded of all I’ve lost...
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Here I am
Living the #MyositisLIFE for many of us.
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This is our life now
Inclusion Body Myositis does not change the way you love your parent. It should not change the way you look at your parent. I had...
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Pregnancy and Dermatomyositis
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
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Coping with Loss
Anyone dealing with a chronic health condition (whether as a patient or loved one/care partner) can tell you, illness makes you think about things that...
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A Light in the Dark: My Realities with Dermatomyositis
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
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The Heart of Healing
I realized that healing includes body, soul and mind.
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“You’re pregnant, get used to it”
My pregnancy journey with dermatomyositis.
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Poly Life
Choosing positivity in this challenging disease and to be strong in mind, body, and soul.
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Care Giver, A Poem
A Caregiver poem for a dear friend. I am the care giver you see me every where. But what you don’t see is just how...
