Unexpected lessons learned while facing my new reality
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
Myositis Awareness Month got me thinking…and really, reflecting about a time before my initial flare-up almost three years ago, when Myositis wasn’t at the forefront of...
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
Inclusion Body Myositis does not change the way you love your parent. It should not change the way you look at your parent. I had...
In the process of dealing with Dermatomyositis, there are flares, painful aches, and weakness. I try to own it. Boss it. Then my body says,...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
Stand Strong Together, Myositis Warriors!
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
Living the #MyositisLIFE for many of us.
Anyone dealing with a chronic health condition (whether as a patient or loved one/care partner) can tell you, illness makes you think about things that...
I admit that I’m very very tired. It’s been a long 6 years of steadily worsening symptoms, especially pain and weakness, and lung involvement again...
Lisa Sniderman shares the story of her realization that we actually are grieving because of our chronic, rare illness and realized she hadn't grieved her...