Long, cold, myositis winter: The realities of living with myositis and germs
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
I am so thankful that each day I face with Myositis, I am given the strength to keep going, one day at a time.
For Mavis, Love Stella. A Caregiver poem for a dear friend. I am the care giver you see me every where, but what you don’t...