
Care Giver, A Poem
For Mavis, Love Stella. A Caregiver poem for a dear friend. I am the care giver you see me every where, but what you don’t...
For Mavis, Love Stella. A Caregiver poem for a dear friend. I am the care giver you see me every where, but what you don’t...
Inclusion Body Myositis does not change the way you love your parent. It should not change the way you look at your parent. I had...
Mums journey with inclusion body myositis was a very difficult one.Following her first fall mum noticed she was falling more and more often, she saw...
In January 2015 I was diagnosed with Dermatomyositis at the age of 36. Of course, I never heard of it. My initial reaction was mixed...
I thank God for each day that I’m able to love and support him the way that he’s always loved and supported me. We still...
Myositis Awareness Month got me thinking…and really, reflecting about a time before my initial flare-up almost three years ago, when Myositis wasn’t at the forefront of...
I was diagnosed with dermatomyositis (DM) in early 2015 when I was 22 years old. I always considered myself very healthy up until I was...
"Save Me" by Alyssa Smith is a song about myositis, released on Rare Disease Day 2019.
I feel peaceful because I usually behave well because I know how hard things are for my mommy. I am peaceful because I have learned...