5 Week Road trip to Yellowstone with IBM Adventurers
Here are our lessons learned for traveling with an IBM’r who requires a patient lift for transfers: Finding suitable hotel rooms was the biggest challenge....
#MyositisLIFE - Page 6 of 7 - Myositis Patient and Caregiver Experience
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Confessions of a Myositis Mom
It is terrible to feel as if you have disappointed people you love, failed to follow through on promises, or are just plain missing out...
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Polymyositis: How to Soar Above the Disease
Before polymyositis (PM) I was like a caterpillar just consuming life. I prided myself on being busy and being the queen of multitasking. I would...
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Prednisone: Friend and Foe
In order to understand how Prednisone changes a person’s life, you need to know what physical activities their life consisted of before. What was modified...
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Stress and Myositis
We know we cannot avoid stress; it’s simply a part of life. Whether it’s stress over our finances, relationships, job, health, or the health of...
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Staying the Course
Although everyday life seems like a mad dash to the finish line honestly it’s all about staying the course and that is often easier said...
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Coping with Loss
Anyone dealing with a chronic health condition (whether as a patient or loved one/care partner) can tell you, illness makes you think about things that...
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Myositis Awareness and Mental Health Awareness Months Meet
Myositis and depression were not only affecting me, but they were also affecting my parents, my partner, my family members, and friends. The fact that...
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Road to Diagnosis: Acceptance and Mission
It took me five years to get a diagnosis, polymyositis, and different parts of my proximal muscles were getting weak every year. It started with...
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Care Giver, A Poem
For Mavis, Love Stella. A Caregiver poem for a dear friend. I am the care giver you see me every where, but what you don’t...
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This is our life now
Inclusion Body Myositis does not change the way you love your parent. It should not change the way you look at your parent. I had...
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Sadly my mum lost her battle as an IBM warrior
Mums journey with inclusion body myositis was a very difficult one.Following her first fall mum noticed she was falling more and more often, she saw...
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An Open Letter: Dear Dermatomyositis
In January 2015 I was diagnosed with Dermatomyositis at the age of 36. Of course, I never heard of it. My initial reaction was mixed...
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Myositis Awareness Day And My Husband’s Diagnosis
I thank God for each day that I’m able to love and support him the way that he’s always loved and supported me. We still...
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A Few Words for the Moment Before Myositis
Myositis Awareness Month got me thinking…and really, reflecting about a time before my initial flare-up almost three years ago, when Myositis wasn’t at the forefront of...
