Coronavirus concerns with Myositis
Coronavirus (COVID-19) and myositis, resources to keep you informed and protected. Practicing good hygiene and not panicking are important tips.
#MyositisLIFE - Page 2 of 7 - Myositis Patient and Caregiver Experience
-
-
Volunteering is a great thing for the mind!
Jason details how volunteering with Myositis Support and Understanding improved his attitude and depression and helped him find a passion in helping others.
-
Parenting with the winter yucks
Parenting with myositis is no different than parenting without. There is no time out, no free parking! It just has a few more obstacles.
-
Long, cold, myositis winter: The realities of living with myositis and germs
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
-
Infection watch!
It seems silly going into ED for what turned out to be just a cold, but such is my life now. You never know if...
-
Tiny Hooves, Big Therapy
Suddenly I looked at my husband in the New Orleans hotel room at a myositis conference and said, “Maybe I could learn to drive a...
-
The travels and tribulations of going on holiday with chronic illness
It could have all gone horribly wrong, but it didn’t. And yes, a lot of that is luck. But a lot of it is also...
-
Facing rare disease alone
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
-
Kept Promises – “Love Never Fails”
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
-
Take a hike Myositis
It can be scary . . . because if I don't read my body's signals right, I could get stuck.
-
Going out of my head
Over the last 3 years of dealing with necrotizing autoimmune myopathy (NAM) I have really tried to get better at asking for help. It's still...
-
Global Genes Patient Advocacy Summit Highlights Video 2109
Seth Rothberg, co-founder of Our Odyssey, and Lynn Wilson, VP of Myositis Support and Understanding (MSU), having some fun at the Global Genes Patient Advocacy...
-
Month Five with Dermatomyositis
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
