Pain Never Sleeps
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
#MyositisLIFE - Page 2 of 6 - Patient and Caregiver Experience
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Why, why, WHY?
My little man peppers me all day with so many questions. It made me realize just how many of my own I have.
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Waiting
Thoughts while recovering from my first dermatomyositis flare
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Leg and Arm Exercises for Myositis
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.
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I’m…so…FRUSTRATED!!
I won’t give up, no worries. Sometimes I just want to SCREAM in rage at this stupid disease and the never ending cycle of flare...
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My Life as a Vampire
I am not a vampire. However, at the direction of my dermatologist, I am living a “full vampiric life.”
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“You’re pregnant, get used to it”
My pregnancy journey with dermatomyositis.
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Long time coming…
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. "To be able to...
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Poly Life
Choosing positivity in this challenging disease and to be strong in mind, body, and soul.
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Feeling like you need your Caregiver to substantiate your symptoms
No myositis patient should feel their medical staff is not taking them seriously, especially because of their gender.
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The pain med taper debacle
The opioid crisis is real and should be addressed, but there is no excuse for the damage it has done to people with incurable pain....
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Here I am
Living the #MyositisLIFE for many of us.
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A Light in the Dark: My Realities with Dermatomyositis
How can I raise awareness if I'm not honest and real about all that comes with dermatomyositis?
