Moving forward
My journey with Myositis and how I learn that progress isn't a straight line. Progress is where you have to keep trying and adapting.
#MyositisLIFE - Page 2 of 7 - Myositis Patient and Caregiver Experience
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Keep Shining by Aoede
"Keep Shining," a collaboration with more than 20 artists, shares Lisa Sniderman's story and struggle with illness, disability and recovery, a powerful and poignant reminder...
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Our Dad was More Than His Dermatomyositis
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
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Queer Eye and the chronically ill…
It was a different experience watching "Queer Eye" this time with chronic illness. How can I zhuzh things up in my life?
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The Big C
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
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Stand up, alone
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
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MSU supports our myositis community members who are Black and are other People of Color (POC)
The vision statement for MSU says that we aim to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of...
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Easy tutorial for CDC recommended mask
Emily walks us step-by-step through making a fabric mask using a technique and design approved by the CDC.
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Welcome to our world
We are going to be here for a while. So, make yourself comfortable. Dig out those blankets for the sofa. Stock up (but don’t hoard)...
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Finding my happy place with IBM
Having a disease like IBM has made doing almost everything I once took for granted very challenging. Here is how I have managed to keep...
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Back to square one?
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
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Coronavirus concerns with Myositis
Coronavirus (COVID-19) and myositis, resources to keep you informed and protected. Practicing good hygiene and not panicking are important tips.
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Volunteering is a great thing for the mind!
Jason details how volunteering with Myositis Support and Understanding improved his attitude and depression and helped him find a passion in helping others.
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Parenting with the winter yucks
Parenting with myositis is no different than parenting without. There is no time out, no free parking! It just has a few more obstacles.
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Long, cold, myositis winter: The realities of living with myositis and germs
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
