Treat my symptoms, please…but don’t patronize me
Our symptoms and histories aren’t two second sound bites. We have complicated health histories and they matter, both for us to be heard and also...
#MyositisLIFE - Page 2 of 5 - Patient and Caregiver Experience
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Advocating for Yourself in the Midst of Insurance Prescription Denials
We explain and highlight a personal account of how one patient fought the insurance company trying to deny a medication for myositis.
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New symptom whack-a-mole
New symptoms are not only an indication of a myositis “flare”, sometimes new symptoms mean an emergence of overlap of other conditions.
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The Heart of Healing
I realized that healing includes body, soul and mind.
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Finally
I don't let this disease define me. I respect it. I acknowledge it. I am actually proud at times knowing it tried to break me,...
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My Mom Has Dermatomyositis (DM)
Although my siblings tell me everything is fine, I know it's not. I'm with my mother every day... there's no way to make it look...
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My Vermont Myositis Family!
I live my life on my terms - finding joy in the everyday things, surrounding myself with people who love and support me and feeding...
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My Journey with Polymyositis
I have polymyositis and was been diagnosed 28 years ago. Despite ups and downs in my treatments, my motto "Hope, Courage, Strength" keeps me going...
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The Other Pain of Living With Myositis
I’m feeling more and more isolated and alone because of this illness. I’ve held off writing publicly about it because then there’s pity and the...
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Pregnancy and Dermatomyositis
My mystery disease actually shows up as a result of the loves of my life. A mystery that is so worth each 9 months. No...
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What does chronic illness mental fatigue feel like?
I’m overwhelmed. I’m scared. I’m tired. I’m tired of new symptoms, new scares, new tests. But I am not alone!
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That D**n Pay Stub
I put it in the back of my drawer...thinking that would lessen the sting of seeing it and being reminded of all I’ve lost...
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I Care About a Myositis Warrior Shirts
These myositis awareness shirts are perfect for a spouse, caregiver, family member, or friend of someone living with myositis. Available in child, adult and plus...
Check It Out$15.00
