Myositis and Immune-suppressed: Self-isolated, masked, and grateful for safety and brighter days ahead.
We may be socially distanced but we have never needed each other more. <3 Thank you MSU and Corbus for all you do for myositis...
#MyositisLIFE - Page 2 of 7 - Myositis Patient and Caregiver Experience
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Easy tutorial for CDC recommended mask
Emily walks us step-by-step through making a fabric mask using a technique and design approved by the CDC.
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Welcome to our world
We are going to be here for a while. So, make yourself comfortable. Dig out those blankets for the sofa. Stock up (but don’t hoard)...
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Finding my happy place with IBM
Having a disease like IBM has made doing almost everything I once took for granted very challenging. Here is how I have managed to keep...
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Back to square one?
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
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Coronavirus concerns with Myositis
Coronavirus (COVID-19) and myositis, resources to keep you informed and protected. Practicing good hygiene and not panicking are important tips.
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Volunteering is a great thing for the mind!
Jason details how volunteering with Myositis Support and Understanding improved his attitude and depression and helped him find a passion in helping others.
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Parenting with the winter yucks
Parenting with myositis is no different than parenting without. There is no time out, no free parking! It just has a few more obstacles.
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Long, cold, myositis winter: The realities of living with myositis and germs
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...
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Infection watch!
It seems silly going into ED for what turned out to be just a cold, but such is my life now. You never know if...
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Tiny Hooves, Big Therapy
Suddenly I looked at my husband in the New Orleans hotel room at a myositis conference and said, “Maybe I could learn to drive a...
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The travels and tribulations of going on holiday with chronic illness
It could have all gone horribly wrong, but it didn’t. And yes, a lot of that is luck. But a lot of it is also...
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Facing rare disease alone
Somehow, when you are sick, there is that feeling of dread that comes with being single that just makes you feel like this is it....
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Kept Promises – “Love Never Fails”
My husband honors his vow; in sickness and health. But for me, when will I no longer grieve the person I once was? The girl...
