Seth Rothberg, co-founder of Our Odyssey, and Lynn Wilson, VP of Myositis Support and Understanding (MSU), having some fun at the Global Genes Patient Advocacy...
I’m starting to be able to leave the house again after a couple of weeks of being really exhausted and housebound. So, things do pass....
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
I don’t want dermatomyositis to define me or take over my life, but sometimes I’m vulnerable and not the strongest version of myself.
This image represents my determination, stubbornness, and desperation for something normal and happy in my #MyositisLife.
Ryan demonstrates what he has learned living with myositis to help to rise from a low toilet using some practical tips and tricks.
Check out some photos we captured participating as a sponsor of the 2019 TMA conference. Find information about our sponsors and partners that also attended....
I must learn to accept that I cannot rush my body. It needs rest. I cannot change this. I can change my attitude to this...
Ryan demonstrates what he has learned to make getting up from a seated position or a wheelchair easier with myositis.
How do you stay positive when fatigue is getting you down?
It is a strange thing to find yourself with tears flowing but not quite realizing why; for me, this has been my experience with the...
My little man peppers me all day with so many questions. It made me realize just how many of my own I have.
Thoughts while recovering from my first dermatomyositis flare
Ryan demonstrates some myositis leg and arm exercises and techniques he has used to help him regain strength.