My journey with Myositis and how I learn that progress isn't a straight line. Progress is where you have to keep trying and adapting.
"Keep Shining," a collaboration with more than 20 artists, shares Lisa Sniderman's story and struggle with illness, disability and recovery, a powerful and poignant reminder...
Our dad's time with dermatomyositis was only a small portion of his life, although a very monumental time in our life.
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Clinically Amyopathic Dermatomyositis
Inclusion Body Myositis
Necrotizing Autoimmune Myopathy
Other (not listed)
It was a different experience watching "Queer Eye" this time with chronic illness. How can I zhuzh things up in my life?
Dermatomyositis and cancer often go hand-in-hand and we don't really know why...
What I learned in those years is that this disease is not just pain, weakness, and fatigue, this is about mental toughness.
The vision statement for MSU says that we aim to “create a world where patients, caregivers, and providers have better knowledge, support, and understanding of...
Emily walks us step-by-step through making a fabric mask using a technique and design approved by the CDC.
We are going to be here for a while. So, make yourself comfortable. Dig out those blankets for the sofa. Stock up (but don’t hoard)...
Having a disease like IBM has made doing almost everything I once took for granted very challenging. Here is how I have managed to keep...
I feel like I am back to step one, after nine months of pushing through. Fighting every side effect. Fighting every symptom. I’m tired now.
Coronavirus (COVID-19) and myositis, resources to keep you informed and protected. Practicing good hygiene and not panicking are important tips.
Jason details how volunteering with Myositis Support and Understanding improved his attitude and depression and helped him find a passion in helping others.
Parenting with myositis is no different than parenting without. There is no time out, no free parking! It just has a few more obstacles.
Viruses become personified. I see them as mean little soldiers standing up on door knobs ready to attack me. I watch them float through the...