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Jerry Williams posted an update 4 years, 6 months ago
@cajungirl4life Hi Kelley and welcome to #MyositisLIFE. Thank you for joining this new and growing site. My name is Jerry Williams and I was diagnosed with polymyositis 18 years ago after an almost 4-year battle for a diagnosis, which has since been corrected to dermatomyositis by some of my doctors. I am the Founder and President of Myositis Support and Understanding Association (MSU), the patient-led nonprofit of which this program was built. We are working to expand and build this site and we thank you for being involved. I will be in touch soon. Best, Jerry
Hi Jerry! So sorry for the really late response. But, you know how this crazy disease goes. One day you’re fine, the next, not so much. Plus, I started my first Rituxan infusion last Friday which had me down for a good week. Next one is this Friday and then I go 6 months before the next 2. Thank you for the warm welcome and I’m glad to be here.
@cajungirl4life Yes, I do understand completely. I truly hope Rituxan is the answer for you! Btw, your articles are amazing! I am waiting to publish your next soon and I hope you will continue writing with us. Your words in the one currently published, I felt so weird reading my own experiences, insecurity, not being the person they agreed to marry, etc., written someone else. Anyway, I hope you feel better, although I know how that goes too. Talk soon. My best.